Welcome to Augustus the Mighty's website. We've created it to keep friends & family updated about Gus's progress.
Gus was diagnosed with stage 4 Medulloblastoma in June of 2010. He has completed six rounds of aggressive chemotherapy & stem cell transplant. He has had eight surgeries and has learned to walk, talk, swallow, and see all over again. His cancer began to spread again in March 2012 and he completed 30 cranial & spinal radiation treatments in June 2012 in the hopes of saving his life.
A new tumor was found in January 2013 and treated with targeted radiation. In January of 2014, Gus lost the ability to walk, stand and began experiencing pain in his lower extremities. An MRI revealed tumor progression in the lower spine, blocking the spinal fluid. We proceeded with targeted radiation therapy, which was immediately successful in alleviating his discomfort. On February 13th, 2014, Gus awoke from a nap having lost his ability to see and speak. He is currently in treatment at Children's Healthcare of Atlanta for these acute symptoms, temporarily halting his involvement in Phase II Clinical Trials of a chemotherapy regimen for patients with Medulloblastoma.
Our story began when just two weeks shy of his second birthday, a golf ball sized tumor was discovered in Augustus Carrasquillo’s brain. His health had rapidly declined in a month with symptoms of vomiting, lethargy, and an unsteady gait. Augustus or “Gus” as he is fondly called by friends and family, underwent major brain surgery in June 2010 where 99% of the tumor was removed from the posterior fossa portion of the brain. A biopsy revealed that it was Medulloblastoma, pediatric brain and spinal cancer. An MRI would reveal more tumors scattered throughout the surface of his brain and a coating of tumors along his spinal cord. His cerebrospinal fluid had free-floating cancer cells in it as well. After surgery, he lost his ability to walk, talk, swallow, and see. Gus had five rounds of intense chemotherapy and one round of high-dose chemotherapy followed by rescue stem cell transplant.
Chemotherapy zapped the majority of the tumors found. Thanks to intensive rehabilitation therapy and lots of hard work on his part, Gus regained everything back, including his ability to walk. He received maintenance chemotherapy at home until further metastases was discovered in March 2012. After 1.5 months with a promising clinical trial drugs cancer had continued to spread and he was admitted into the hospital for pain management. In the hopes of saving his life, Gus endured 30 cranial and spinal radiation treatments. He recovered better than any of the doctors expected. Unfortunately, new tumors were found in January 2013 and January 2014, both targeted with additional radiation.
Gus has an amazing personality considering everything he has been through. He LOVES animals and zoos! He is a beautiful little boy that will melt even the toughest of hearts with his giggles and smiles. He is truly a mighty warrior, hence his nickname “Augustus the Mighty,” and his strength is an inspiration to many. Many have named him as their hero.